Case study - Cerebral palsy: Nursing

Nurse Jamie works as a nurse navigator at a pediatric neurology clinic and is caring for Lily, a 9-month-old with a history of cerebral palsy. Nurse Jamie goes through the steps of the Clinical Judgment Measurement Model to make clinical decisions about Lily's care by recognizing and analyzing cues, prioritizing hypotheses, generating solutions, taking action, and evaluating outcomes. 

First, Nurse Jamie recognizes important cues including Lily’s vital signs, which are temperature of 99 F, or 37.2 C, heart rate 115 beats per minute, respirations 32 breaths per minute, and oxygen saturation 95% on room air. Lily’s weight is stable when compared to her last visit. Nurse Jamie also speaks with Lily’s caregiver, Linda, who reports that during feedings at home, Lily frequently gags and doesn't swallow her food. When Nurse Jamie attempts to feed Lily a spoonful of baby food, he notices Lily produces a tongue thrust, which moves the food out of Lily’s mouth.   

Next, Nurse Jamie analyzes these cues. He reviews the electronic health record, or EHR, and sees that Lily has a history of delayed oral-motor skills and poor jaw control when feeding from a bottle. He remembers that children with cerebral palsy often have issues with oral-motor skills that can result in difficulty feeding, weight loss, and speech delays. He also notes that coughing and choking while eating can predispose children with cerebral palsy to aspiration and other respiratory problems.  

Nurse Jamie realizes that Lily needs effective management of care from a multidisciplinary team to support her activities of daily living, or ADLs, such as feeding.  

Now, using the information she's gathered, along with Lily’s medical history, Nurse Jamie chooses a priority hypothesis of impaired oral intake.   Then, he generates solutions to address Lily’s impaired oral intake that will include nonpharmacologic interventions; and he establishes the expected outcome that after intervening, Lily will show improvement in feeding at her one-month follow-up appointment.  

Nurse Jamie then takes action to implement these solutions. He obtains a referral for a speech-language pathologist and an occupational therapist to ensure timely assessment and intervention for Lily.  

Nurse Jamie teaches Linda about techniques he can use in the meantime to improve Lily’s ability to swallow. For example, he explains that reclining Lily during meals can cause neck hyperextension which can interfere with swallowing, so keeping Lily in an upright feeding position will help Lily’s neck to be less extended. Nurse Jamie also shows Linda how to stabilize Lily’s jaw while feeding to allow her greater control when swallowing by using one hand to feed Lily and placing the other hand under and around Lily’s jaw while slightly tipping it upward. 

One month later, during the follow-up appointment, Nurse Jamie evaluates the outcome of his actions. 

Nurse Jaime: Hi Linda. How has Lily been doing with her feedings since her last appointment? Were you able to take her to her appointments with the speech-language pathologist and occupational therapist?